From life experience, mainly from the intense bits and births, I knew the best way to ride this roller coaster was to be greatfull for the gentle earth angels placed along our road, indeed to everyone for their time and energy, and to surrender. There was nothing I could do about what we were given to deal with, but everything I could do about how I handled it, for Merlins sake.
Nonetheless, it was a massive paradigm shift on every level as you may appreciate. In many ways I felt like Daniel going into the Lions Den of Big Pharma. And had to very quickly wrap my head around what was going on, and how to approach it. The first few days were spent getting his blood counts back up to somewhere near normal, as well as his platelettes, and getting a port-a-cath put in just under his shoulder bone, close to his heart, so as not to burn out his veins with chemotherapy. And his first Lumbar Puncture and spinal chemotherapy were given within three days of the start date. The night before his first chemo was the longest and darkest night of my soul in my living memory, and after talking long and deep to Currawong, I messaged everyone I knew and trusted, my beloved facebook Brain Hive, from Ayurvedic Masseurs, to Osteopaths, to Naturopaths, to Acupuncturists, to just about every alternative path you can imagine, as well as Oncology Nurses, and Western Medicine Practitioners as well, and asked them if there was any alternative.
All in all, from the moment we walked out of our old house on the 10th of the 10th 2016, till we finally got to move into our new home and be reunited with the rest of the Little Big Mob, was 7 weeks and 2 days. The weirdest part about that, was moving into a house full of my family and donated possessions, and feeling like a complete stranger to it. While we were in hospital the rest of the mob had been taken under the wing of the local Catholic community through St Vinnies being contacted, and asked to help out with furniture. A local volunteer for Vinnies was coming round regularly to bring furniture, clothes vouchers, bags of Bakers Delights seconds, and anything else she could think of to help. We got out just in time for Christmas, and to everyones delight, we were gifted a Christmas tree and decorations, along with splendidly wrapped presents for everyone including 'mother' and 'father', and the cats and dog!! Also food vouchers and gift vouchers, and presents so good that you would have thought we'd all been interviewed to assess the perfect gift for the individuals. All from generous patrons of St Vinnies and its extended community. Another large amount of judgements faced, challenged and humbled.